Key Publications

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1. Hopkins ZH, Thiboutot D, Homsi HA, Perez-Chada LM, Barbieri JS. Patient-Reported Outcome Measures for Health-Related Quality of Life in Patients With Acne Vulgaris: A Systematic Review of Measure Development and Measurement Properties. JAMA Dermatol. 2022 Jun 22. doi: 10.1001/jamadermatol.2022.2260. Epub ahead of print. PMID: 35731537.

2. Wongvibulsin S, Frech TM, Chren MM, Tkaczyk ER. Expanding Personalized, Data-Driven Dermatology: Leveraging Digital Health Technology and Machine Learning to Improve Patient Outcomes. JID Innov. 2022 Feb 1;2(3):100105. doi: 10.1016/j.xjidi.2022.100105. PMID: 35462957; PMCID: PMC9026581.

3. Secrest AM, Chren MM. Incorporating Patient-Reported Outcomes as a Vital Sign for Dermatologic Clinical Care and Clinical Investigations. J Invest Dermatol. 2022 Jun;142(6):1529-1532. doi: 10.1016/j.jid.2022.01.008. Epub 2022 Feb 5. PMID: 35131255; PMCID: PMC9133171.

4. Kirby JS. Patient-Reported Outcomes in Dermatology. JAMA Dermatol. 2022 Jan 1;158(1):97-98. doi: 10.1001/jamadermatol.2021.1559. PMID: 34851394.

5. Taliercio VL, Snyder AM, Biggs AM, Kean J, Hess R, Duffin KC, Cizik AM, Secrest AM. Clinicians' perspectives on the integration of electronic patient-reported outcomes into dermatology clinics: a qualitative study. Qual Life Res. 2022 Jun;31(6):1719-1725. doi: 10.1007/s11136-021-03030-w. Epub 2021 Nov 2. PMID: 34727299.

6. Evans T, Lee E, Wysong A, Sutton A. Patient reported outcome measures in patients undergoing Mohs micrographic surgery: Timing matters. J Am Acad Dermatol. 2022 Feb;86(2):480-481. doi: 10.1016/j.jaad.2021.09.037. Epub 2021 Sep 25. PMID: 34582840.

7. Barbieri JS, Gelfand JM. Patient-Reported Outcome Measures as Complementary Information to Clinician-Reported Outcome Measures in Patients With Psoriasis. JAMA Dermatol. 2021 Oct 1;157(10):1236-1237. doi: 10.1001/jamadermatol.2021.3341. PMID: 34495286; PMCID: PMC8427484.

8. Topp J, Apfelbacher C, Ständer S, Augustin M, Blome C. Measurement Properties of Patient-Reported Outcome Measures for Pruritus: An Updated Systematic Review. J Invest Dermatol. 2022 Feb;142(2):343-354. doi: 10.1016/j.jid.2021.06.032. Epub 2021 Jul 31. PMID: 34339743.

9. Pattinson RL, Trialonis-Suthakharan N, Gupta S, Henry AL, Lavallée JF, Otten M, Pickles T, Courtier N, Austin J, Janus C, Augustin M, Bundy C. Patient-Reported Outcome Measures in Dermatology: A Systematic Review. Acta Derm Venereol. 2021 Sep 28;101(9):adv00559. doi: 10.2340/00015555-3884. PMID: 34263330.

10. Gabes M, Zeidler C, Ständer S, Chen SC, Apfelbacher CJ. Refinement and validation of the ItchyQoL using classical test theory and item response theory resulted in a reduction of the response categories from a 5-point to a 3-point scale. Br J Dermatol. 2021 Sep;185(3):548-554. doi: 10.1111/bjd.20082. Epub 2021 Jun 11. PMID: 33763849.

11. Secrest AM, Hopkins ZH, Frost ZE, Taliercio VL, Edwards LD, Biber JE, Chen SC, Chren MM, Ferris LK, Kean J, Hess R; Dermatology PRO Consortium. Quality of Life Assessed Using Skindex-16 Scores Among Patients With Acne Receiving Isotretinoin Treatment. JAMA Dermatol. 2020 Oct 1;156(10):1098-1106. doi: 10.1001/jamadermatol.2020.2330. PMID: 32639529; PMCID: PMC7344833.

12. Silverberg JI, Lei D, Yousaf M, Janmohamed SR, Vakharia PP, Chopra R, Chavda R, Gabriel S, Patel KR, Singam V, Kantor R, Hsu DY. Comparison of Patient-Oriented Eczema Measure and Patient-Oriented Scoring Atopic Dermatitis vs Eczema Area and Severity Index and other measures of atopic dermatitis: A validation study. Ann Allergy Asthma Immunol. 2020 Jul;125(1):78-83. doi: 10.1016/j.anai.2020.03.006. Epub 2020 Mar 18. PMID: 32199977.

13. Terwee CB. The Value of Item Banks, CAT, and PROMIS for Dermatology. J Invest Dermatol. 2020 May;140(5):1089-1091. doi: 10.1016/j.jid.2019.12.017. Epub 2020 Jan 13. PMID: 31945350.

14. Perez-Chada L, Taliercio VL, Gottlieb A, Van Beek M, Duffin KC, Reeder M, Merola JF, Swerlick RA. Achieving Consensus on Patient-Reported Outcome Measures in Clinical Practice for Inflammatory Skin Disorders: On Behalf of International Dermatology Outcome Measures and the American Academy of Dermatology. J Am Acad Dermatol. 2019 Sep 13:S0190-9622(19)32745-8. doi: 10.1016/j.jaad.2019.09.008. Epub ahead of print. PMID: 31525439.

15. Rijsbergen M, Niemeyer-van der Kolk T, Rijneveld R, Pinckaers JHFM, Meshcheriakov I, Bouwes Bavinck JN, van Doorn MBA, Hogendoorn G, Feiss G, Cohen AF, Burggraaf J, van Poelgeest MIE, Rissmann R. Mobile e-diary application facilitates the monitoring of patient-reported outcomes and a high treatment adherence for clinical trials in dermatology. J Eur Acad Dermatol Venereol. 2020 Mar;34(3):633-639. doi: 10.1111/jdv.15872. Epub 2019 Sep 4. PMID: 31419338; PMCID: PMC7064941.

16. Secrest AM, Chren MM, Hopkins ZH, Chen SC, Ferris LK, Hess R. Benefits to patient care of electronically capturing patient-reported outcomes in dermatology. Br J Dermatol. 2019 Oct;181(4):826-827. doi: 10.1111/bjd.18027. Epub 2019 Jul 15. PMID: 31017651.

17. Mori S, Lee EH. Beyond the physician's perspective: A review of patient-reported outcomes in dermatologic surgery and cosmetic dermatology. Int J Womens Dermatol. 2018 Sep 13;5(1):21-26. doi: 10.1016/j.ijwd.2018.08.001. PMID: 30809575; PMCID: PMC6374698.

18. Bottomley CJ. Going paperless: a new era for patient-reported outcome measures in dermatology. Br J Dermatol. 2017 Nov;177(5):1157-1158. doi: 10.1111/bjd.15731. PMID: 29192979.

19. Apfelbacher CJ, Nelson PA. Patient-reported outcome measures and qualitative research in dermatology: the quest for authenticity. Br J Dermatol. 2017 Feb;176(2):285-287. doi: 10.1111/bjd.15251. PMID: 28244071.

20. Finlay AY. Patient-reported outcome measures in psoriasis: assessing the assessments. Br J Dermatol. 2015 May;172(5):1178-9. doi: 10.1111/bjd.13775. PMID: 25963202.

21. Kitchen H, Cordingley L, Young H, Griffiths CE, Bundy C. Patient-reported outcome measures in psoriasis: the good, the bad and the missing! Br J Dermatol. 2015;172(5):1210-21. doi: 10.1111/bjd.13691. Epub 2015 Apr 12. PMID: 25677764.

22. van Cranenburgh OD, Prinsen CA, Sprangers MA, Spuls PI, de Korte J. Health-related quality-of-life assessment in dermatologic practice: relevance and application. Dermatol Clin. 2012 Apr;30(2):323-32, x. doi: 10.1016/j.det.2011.11.004. Epub 2011 Dec 20. PMID: 22284146.

23. Barnes LE, Levender MM, Fleischer AB Jr, Feldman SR. Quality of life measures for acne patients. Dermatol Clin. 2012 Apr;30(2):293-300, ix. doi: 10.1016/j.det.2011.11.001. Epub 2011 Dec 16. PMID: 22284143.

24. Heller MM, Wong JW, Nguyen TV, Lee ES, Bhutani T, Menter A, Koo JY. Quality-of-life instruments: evaluation of the impact of psoriasis on patients. Dermatol Clin. 2012 Apr;30(2):281-91, ix. doi: 10.1016/j.det.2011.11.006. PMID: 22284142.

25. Cormier JN, Cromwell KD, Ross MI. Health-related quality of life in patients with melanoma: overview of instruments and outcomes. Dermatol Clin. 2012 Apr;30(2):245-54, viii. doi: 10.1016/j.det.2011.11.011. Epub 2011 Dec 21. PMID: 22284139.

26. Chren MM. The Skindex instruments to measure the effects of skin disease on quality of life. Dermatol Clin. 2012 Apr;30(2):231-6, xiii. doi: 10.1016/j.det.2011.11.003. Epub 2011 Dec 20. PMID: 22284137; PMCID: PMC3269028.

27. Salek S, Roberts A, Finlay AY. The practical reality of using a patient-reported outcome measure in a routine dermatology clinic. Dermatology. 2007;215(4):315-9. doi: 10.1159/000107625. PMID: 17911989.